The Norwegian Arthritis Registry - NorArthritis

NorArthritis is a national quality registry established to increase the knowledge on chronic inflammatory joint diseases in Norway. We seek to improve patient care by evaluating drug benefits and safety, and through quality and research projects, to secure appropriate treatment for future patients.

Read more about The Norwegian Arthritis Registry - NorArthritis

The Norwegian Arthritis Registry - NorArthritis

Data concerning patients with chronic inflammatory joint diseases such as rheumatoid arthritis, psoriatic arthritis and ankylosing spondylitis are registered in NorArthritis and the collection is based on informed consent from the patients.


Aims 

The aim of the NorArthritis registry is to collect high quality data on patients with chronic inflammatory joint diseases in order to improve the quality of care among these patients.


Data on disease characteristics, treatment process at the different rheumatology departments, treatment efficacy, as well as potential side effects and complications, are collected. This knowledge is used to secure quality and equality in patient handling and eventually improve patient outcomes.

Registry approvals and management

In 2013, the NorArthritis was granted license from the Norwegian Data Protection Authority to administer the registry and handle the data. The same year, the NorArthritis was approved as a national quality registry by the Ministry of Health and Care Services.


The western health region (Helse Vest) is responsible for the data handling and the Department of Rheumatology, Haukeland University Hospital is in charge of operating the registry on a daily basis.

Board

An advisory board consisting of rheumatologists from all health regions, relevant research groups, The Norwegian Society of Rheumatology, as well as a patient representative is responsible for strategic decisions such as guiding main activities, as well as for evaluating applications for registry data in research projects.


The members of the board are:

Clara Beate Gram Gjesdal, Chairman of the board, Western Norway health region

Liv Boge Amundsen, patient representative

Gunnstein Bakland, Northern Norway health region

Marianne Wallenius, Mid-Norway health region

Åse Stavland Lexberg, Southern and Eastern Norway health region

Elisabeth Lie, Southern and Eastern Norway health region

Erik Rødevand, representative from the Norwegian Society of Rheumatology

Bjørg-Tilde Svanes Fevang, head of registry

Guidelines for admission to data

Vedtekter (PDF - in Norwegian)

Annual reports

Annual report 2016 (PDF - in Norwegian)

Contact


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