The International Porphyria Network Ipnet

Ipnet is a non-profit learned association (or scientific association), having its office in Bergen, Norway.

Ipnet will promote fundamental and clinical research in the field of porphyrias, improve knowledge of the porphyrias and facilitate best practice in their treatment and diagnosis by accommodating and interconnecting expert activities across the world in the service of porphyria patients.

More information about Ipnet can be found on Porphyrianet.org​

The Norwegian Porphyria Centre NAPOS runs two IPNET projects:

• Ipnet External Quality Assessment Scheme (Ipnet EQAS)​

• European Porphyria Registry (EPR)​