The European Porphyria Network - Epnet

Epnet is a non-profit learned association (or scientific association), having its office in Bergen, Norway. Epnet will promote fundamental and clinical research in the field of porphyrias, improve knowledge of the porphyrias and facilitate best practice in their treatment and diagnosis by accommodating and interconnecting expert activities across Europe in the service of porphyria patients. More information about Epnet can be found on www.porphyria.eu

NAPOS runs the Epnet External Quality Assessment Scheme (Epnet EQAS) and the European Porphyria Registry (EPR).


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