Data collection

Data collection is based on informed consent from each individual patient.

Data are collected electronically using one of two applications.

GoTreatIT is a structured medical journal used at most rheumatology departments in Norway for the registration of data concerning patient demographics, diagnosis, disease characteristics, comorbidities, medical treatment, disease activity, side effects, and patient function and quality of life.

Patients and doctors report at each visit and data from each hospital’s local databases are transferred electronically into the NorArthritis national database.

The MRS is a medical registration system, developed by HEMIT (Helse Midt-Norge IT) for the registration and data handling for medical health registries. This platform constitutes the national database for the registry. Data handling is performed here, and care providers may access this program to get reports concerning their own departments. Also, some departments as well as several private rheumatologists use this system for data registering into the NorArthritis.

The patient information form is available here:

Patient information and consent form (word)Attachment to patient consent form (word)

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